Fibromyalgia – Links, Sites and Organizations
Keep in mind if you have a chronic illness, a lot of sites and people will try to sell you books and supplements. Some will be useful and of course many will not. I take a lot of supplements that do help me, but, I have also spent a lot of money on ones that didn’t work for me. Be aware that there are a lot of things that just don’t work.
We want so desperately to get better that we often will try anything. A good rheumatologist who knows this disease is vital to your health and well-being. (They are hard to find). IF you are not happy with your health care provider, go to another one who is knowledgeable! It can be hard to find a good rheumatologist and physician, but it is important. Many still believe there is no such thing as Fibromyalgia. I had a surgeon friend who recently told me this, as of May 2006.
Hey, I didn’t believe there was such a thing until it found me — or I got it. Whichever. (Amy O., RN)
Fibromyalgia – More than Aches and Pains
Fibromyalgia: Questions and Answers
This consumer health information fact sheet answers basic questions about fibromyalgia — what is it; how is it diagnosed; and what are the treatment options. It also highlights current research efforts²from the National Institute of Arthritis and Musculoskeletal and Skin Diseases, National Institutes of Health
Fibromyalgia Treatment Reviews
Allows users to read posted opinions of
fibromyalgia treatments or leave their own.
Fibromyalgia Research: Challenges and Opportunities
This article discusses research studies in fibromyalgia, the breakthroughs that have been made so far towards finding a cure and efforts to manage the disease in the interim. ( National Institute of Arthritis and Musculoskeletal and Skin Diseases, National Institutes of Health)
Where To Get Information About Fibromyalgia?
The National Fibromyalgia Association
Up to date, no nonsense, accurate information for people with FMS and family members. ALSO, a great list of physician referrals and a useful magazine. Click on the banner to go there.
Fibromyalgia.com – An online pain management resource. Includes:Fibromyalgia, Interstitial Cystitis ² Chronic Fatigue, Irritable Bowel Syndrome,
Fibromyalgia – Transcript — Good introduction for beginners and family of someone with FMS.
Fibromyalgia Video and FMS transcript… from June 1999 – A lot has changed since then, but it is interesting to see how different the view was just a three years ago.
The American Fibromyalgia Syndrome Association
A nonprofit organization dedicated to research, education and patient advocacy for fibromyalgia syndrome (FMS) and chronic fatigue syndrome (CFS). “Our Mission AFSA is the only charitable organization whose primary mission is to seed research in FMS and CFS. We acknowledge that patient and physician education, public awareness and advocacy are all important ingredients in aiding the lives of people with FMS and CFS”.
Fibromyalgia Fact Sheet – From the American College of Rheumatology
Fibrohugs – Fibromyalgia Support Home Page
“ The mission of FibroHugs is to offer a place where persons with Fibromyalgia can find understanding, knowledge, and support in their daily battle with this painful disease. To offer support, not only for the patient but also to their loved ones, in an attempt to help all understand the effects of this illness. It is also our hope to bring awareness of this disease that a cure will be found”.
Co-Cure FMS, CFS & FM Good Doctor List – “a collection of listings, of doctors who have been recommended by and for CFS/CFIDS/FM patients. The physicians are listed on separate pages by country and state/province/region and, within each page, by city”. (FYI – I had an MD from this list who was not good physician, but that was just one experience, and if they yell at me for writing this, okay).
World Group Support Directory – CFIDS/FMS/M.E.
Arthritis Foundation
1330 West Peachtree Street
Atlanta, GA 30309
800-283-7800
or call your local chapter in your phone directory
This is the main voluntary organization devoted to all forms of arthritis. The Foundation publishes a pamphlet on fibrositis, the first name for fibromyalgia. Single copies are free with a self-addressed stamped envelope. The Foundation also can provide physician referrals.
Fibromyalgia Network
P.O. Box 31750
Tucson, AZ 85751-1750
800/853-2929
This is where I buy my some of my supplements and herbs:
The Vitamin Shoppe – Click Here and Save Big on 25,000
products from over 400 brands 
This stuff does help for fatigue and brainfog too.
Fatigue Fighter, Boost Energy Levels, Fight Fatigue and Bring Life Back into Your System
The best CoQ-10 I have found from about 8 years of use is made by TwinLabs. Yes, it costs more, but it works better. It is light sensitive, if you buy CoQ-10 in a bottle that isn’t brown, don’t buy it.
If you have a personal website about FMS and you’d like it added, let me know. I’ll try to get back to you, or add your site in.